Case Study: Advocacy Relations

Overview: Acromegaly is a rare disease affecting a small population of about 6,000 in the U.S. which makes it difficult to reach acromegaly patients; patients are often misdiagnosed. Our goal was to ensure that every single patient living with acromegaly knows about the development of a new oral treatment option at the time of approval.

Approach: JPA to create a patient advocacy program that would empower and engage acromegaly patients. The hub of this program was an unbranded website, www.acromegaly.care. Via this site, patients shared their real-life stories and accessed a library of educational materials.

Results: In the first month after the site launch it had: over 3,000 website visits; over 10,600 page views, of which 49 percent were on mobile. Over the course of the campaign, we estimate reaching over 80 percent of patients living with acromegaly in the U.S.